Sneaky eyes and nays...

Some goddesses are puzzled by this...like me...

If I could have said no....I probably wouldn't have. Found out today, from the top expert in the state, that my uveitus is chronic and will reoccur throughout my life, and that my vision hadn't improved much in the last few weeks as we awaited test results. (no shit?!) I guess at the 6 month point, they consider that this isn't an acute attack. It would have been nice if they'd figured this out before I ended up with retinal scarring, what the eye doctors called sneaky eye....my eye has basically decided it doesn't much like letting light into it. It does have a pretty cloverleaf pattern to my pupil now though. ;D

Once again, my body tests as fairly normal, I probably don't have Sarcoidosis, Lupus, or Lymphoma. I've only currently got symptoms in one eye, and the tests came back okay so they're thinking the cancer thing isn't it. They're pretty positive it's not a virus (the inflamation is more prevalent in the back of my eye than the front which is indicative of some type of auto immune response.) They explained it as being like arthritis...ie. arthritis is your own immune system attacking your joints, this is my own immune system attacking my eye. Ergo, no solution, no underlying cause, and as usual we treat the symptoms.

I got the needle in the eye socket thing today. I was misled; they didn't stick it through my eye, just around my eye socket...the actual aim is to miss putting it in the eye entirely. (Gee shucks, and I missed that?) The treatment is supposed to be about 70% effective in most people, but less risky to me than if they gave me oral steroids to try and treat the inflamation systemically. (My whole well-padded body thanks you for deciding against that...runs of steroids are part of what helped me add to my Junoesque frame!) I can get these shots about every month, if it helps reduce the inflamation and swelling in the back of the eye, but I have to be monitored every few weeks to make sure the pressure inside my eye doesn't go up. (I don't know if the eyeball bursts if it does, don't really want to know...just let me live in blissful ignorance.)

My dear daughter spent most of dinner watching my eye swell and commenting on how horrible it looks...she's right. And the darn swelling in the socket looks like a blistered bag under my lid that I could pack clothes for a week in! My CPAP breathing mask doesn't much like the fluid there either, everytime the mask shifted it woke me up...which is why I have time to update my adoring public with all the gruesome and boring details.

Life's okay, R is tired and the kids already have spring fever...
more later from a puzzled goddess who may soon be able to drive again...fear me.