18 December, 2010

Pain full thoughts...

Some goddesses are puzzled by this...like me...

I've had low blood sugar, migraines, colitus, acid reflux, back problems, and high blood pressure since my mid teens. Fibro in my late teens. Chronic fatigue, hyperthyroid, thoracic outlet, and carpal tunnel in both hands in my late twenties. I got pregnant and my migraines went to clusters and then daily clusters. Then they gave me drugs that made me obese. I developed high cholesterol, hypothyroid, high spinal pressure. Now finally diabetes, Hashimoto's thyroiditis, and uveitus.

Now by the luck of the draw the pain isn't upping my blood pressure, it's lowering it.  Which I didn'..t know could happen. So now if I bend over at the wrong time or move too fast I pass out. Orthostatic Hypotention...? WTF?  Sounds fun, huh? Wee.... yes, that's sarcastic. One more weird ass thing to explain to people that doesn't kill me,  or put me in more blinding pain than I've been for the past 17 years, but one more time my body triumphs over my mind.


I watch others who I know are in so much pain, and I try not to make it a contest about pain. Just getting through each day is a miracle, so how can pain become a contest? But when you so constantly feel like you have failed at all life has thrown at you, it's hard not to see it as one more in a long string of things you've failed at...pain tolerance....you just don't measure up there either....no wonder you just can't take any more...

Knowing that I'm going back to biting, grinding, soul numbing pain that never ends, of the sort that if you were an animal and could bite a limb off to it stop you would and that there is no medicine or trick or activity or meditation or THING that I can do or NOT DO in my life to stop it from coming back to me scares the hell out of me. The medication is not as effective as it was...soon it won't be effective at all...again

The pain doctor, and the psychologist she sent me to, think I'm giving up, and that I have a negative outlook. I don't think that's the case, or I would have swallowed a gun long ago. I just don't think either one of them intimately knows pain. Most of the people who try to regulate it I don't think have ever known or lived with much real pain in their lives or they wouldn't really give a rat's ass about the small percentage of people who abuse medication and would have more compassion for those who have to live in the pain. If crawling into a bottle or a bottle of pills would give me back some of my cognitive function or reasoning powers around the pain, I'd do it in a heartbeat. Hell, I'd do it if only to get a teensy break from unrelenting agony occasionally.

But I'm not dying and so I have to live on in unrelenting agony because my government wants to be my mommy and knows what's best for my body...even better than my doctors...and they've known so well what is best so far....

yeah...from the sometimes goddess of sarcasm and pain

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