Some goddesses are puzzled by this...like me...
This is pretty stream of conciousness. It's the morphine and the temperature of 102....it tends to make me free associate weird thoughts...
People talk about energy levels all the time as if they understand them. As if energy would miraculously appear out of thin air and pump them up and they could go on and do more and be more. The say things like, "I'm getting my second wind." Or, "I hit a wall." I drink in the chi of the universe. Feel the energy flow....
Most of the energy flow I feel is right out of my body...and of course it bites me in the ass on the way out.
I remember my disability insurance company trying to send a private investigator to investigate my claim quite a few years ago. It was soon after my dad died. Karmic timing as usual.
It was laughable in retrospect. At the time, I found it far from funny that this physically active 20 something single guy who had never had kids, a college education, tried to be supermom, been a computer professional, or been any kind of professional for that matter since he couldn't even keep a scheduled appointment, was the one that was putting the hammer of judgement down on my life.
He looked around at an overweight mom, who barely had insurance to pay for her medication to keep her disability under control and her meds that would keep her alive, that couldn't do much housework and had 2 children under the age of 7 in an apartment 1/3 the size of the house they had lost in the bankruptcy the disability had forced them through. The apartment might as well have been used to shoot a scene from "Cops" in it. A husband that was fighting his own disability issues, but working full time.
The investigator met with me once or twice and cancelled one appointment. Then told the insurance company I wasn't cooperative and obviously wasn't disabled because I wouldn't meet him on 2 hours notice when he rescheduled an appointment in a town 10 miles away and I couldn't drive. But I was a flake in his mind because I had broken teeth and couldn't afford dental insurance and spoke of only having so much energy in a day to get me through.
When you look ill, or run a temperature, people expect you to go lie down. When you look....say it with me....JUST FINE! People make all sorts of judgements. They'll expect you to remain self-sufficient and when you aren't, they'll ask what they can do to help, but God forbid you actually have worked out an answer or call on them for help. That's when the excuses come out.
I guess I've been lucky? I can count the times my immune system has been healthy enough for me to run a temperature in the last ten years on my fingers. You'd think, because it's so rare, that I would immediately lie down and try to get better. Wrong! If I'm running a temperature I'm actually probably in BETTER shape than I am normally, at least my immune system is fighting.
I was running a temperature of 102-105 degrees the 10 days we had to move out of our home while it was being foreclosed. I didn't have the luxury of checking into the hospital. Luckily, my sister and niece helped my husband and I a bit and my parents watched our kids a bit or we would have lost everything else we owned. No one else could help. I still remember how dark that time was. I was very bitter about it for a long time. I felt like I had failed my family, lost our home, and lost all our friends all at once. I collapsed into bed in the den of my parent's home for about 3 months after we loaded up and moved all our stuff and got through the bankruptcy hearings. I don't remember much from that time but physical and emotional pain.
I'm only dwelling on this now I think because I'm trying to put things behind me and move on with my life. The bitterness is doing me no good. With the new meds, I'm out of the pain haze enough that I'm thinking again so I'm remembering more than just the day to day which makes me sad for all the people that I thought I knew. Because I'm dealing with the pain clinic again, I'm required to go into therapy, again, even though the therapist doesn't seem to think he has much to teach me. I'm sure there is...I've had 47 years to screw up this psyche...there's got to be something in there for him to fix! He's another one that I want to introduce this book to tho'. He seemed so absolutely floored that I could speak coherently and string two sentences together. And if I'm what he thought of as being a very cognizant and highly intelligent patient who had all my faculties....I'd hate to see what he deals with the rest of the time.
There are so many holes...so many holes were the pain has eaten through my brain and the cobwebs just can't spin to close them fast enough.
I'm running temperatures again, which means my immune system is the healthiest it's been in a year or two. Viva narcotics! I had so adapted to living with the pain and the lack of energy that I had forgotten why I wanted to live a life.
I have good days and bad days. The bad days had way started to outnumber the good and when I was delegating most of my living...I didn't really feel like I was living... I don't wait to recover anymore, I guess that's the biggest lesson I've learned. It's the lesson my husband hates the worst. He considers it giving in. I consider it adapting to the new situation and moving on.
It's time to adapt to the new pain level and move on. Luckily, the current level of narcotics allows me a breather for awhile to do that....3 months ago I didn't feel optomistic enough to have that option.
Now it's off to see what my fever induced dreams want to tell me....
from the goddess of night sweats or day mares
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