Showing posts with label cataract. Show all posts
Showing posts with label cataract. Show all posts

16 August, 2011

Next time I agree to this short of a timeline....shoot me....

Some goddesses are puzzled by this...like me... I always let the helium float that hand up and say yes. I know better. Dayam. I knew better when I did the 2 charters for Stormgods. It burned me out for weeks. My disabilities and helium hand do NOT mix. There's more than one reason I had to stay home from Stormgods.

I knew better this time. But I'd promised Eleanor a charter for this reign and it was ALMOST done...not quite...so the guilt hit and I figured, (and Kerryk said, "you've got 4 weeks"). So I said yes to my first Kingdom commission scroll. The knight was put on vigil at Stormgods and was to be made a peer at Sport of Kings.

I said yes.  Then I was a dumb ass and double checked Kerryk and the calendar and discovered that there was less than 3 weeks to get it done....oh, shit. So I quickly read through all those notes I had from all those classes where the experienced scribes tell you what to do and who to contact. And I sent the emails out and waited for responses....and waited.

Checked the OP and the armorial and didn't see any arms so I talked to the Wrangler, but the candidate seemed to think it would be just fine to use his arms since they were in submission and he'd been told they were sure to pass and he had received a "letter" about his name.

2 weeks later I got the final word after contacting and not hearing from Lion's Blood. Even though the Scribal procedures call for scribes to get wording approved through Lion's Blood...Lion's Blood doesn't want to see it, and since Lion's Blood needs to sign all blazons and emblazons they do NOT want any scrolls created with out PASSED devices or names or they WON'T sign it, PERIOD. I didn't get the courtesy of this response, but at least Sable Sable did...It should be fun the NEXT time somebody tries to actually follow the scribal procedures as they are written in the scribes manual...hmm....guess not too many people do....or maybe too many people are and Lion's Blood is getting inundated. (I never checked back emails on the scribal list to see that THIS Lion's Blood didn't want to see scroll text. LOL So I could have gotten four days of that time back for myself if I'd just remembered that email going out awhile back, but I'm too forgetful, I always go back to the manual.)

Anyway, requests for info from other sources besides the individual himself were woefully lacking in information and uninformative. I was glad the people weren't talking about me. I got essentially "He's a good fighter, has won this award and wears armor this color." Wow....somebody told me he was really tall and he was a really sweet guy. Not a great deal to go on when you are trying to personalize something to make a memory for someone to last a lifetime. Luckily his Wrangler knew more, and since it wasn't a surprise, his Wrangler put him in contact with me and I could get some info out of him to add to the mix.

In a few days I'll post some pix of the scroll and how it went. Design inspirations, and all that so people can follow the thought process and see what a pain it is and how many mistakes are made when you can't take breaks when you are tired. Or when your one working eye is over strained and you are losing your depth perception. (I really am earning the OneEyed title lately!)

But it will have to wait until it's done....and after it's been awarded....at Sport of Kings...which I won't get to see. Hopefully, someone will get a picture.
from a puzzled and tired goddess

28 May, 2010

Video games for eye surgeons...I swear to God...


Some goddesses are puzzled by this...like me...
I made this eye bead necklace for my eye surgeon. Dr Rebecca Armour at Casey Eye Institute. She's great. Gave me back most of my vision. Eye beads have been used in history as talisman's to protect from the "evil eye" which is why the theme is so common in beads. ;D

So many cultures thought that you could illwish through the evil eye. Also, beads in the representation of a body type are thought to protect that body type. So this is a double whammy. ;D

The only bead that I actually burned in my torch was the eye bead itself. The rest are store bought glass and mineral on polycoated tigertail with brass accents. But I strung it!

My lampworking teacher, Epona, taught me how to make the eye beads to look so realistic! They are almost scarry. So now I'm having to figure out uses for spotted white beads. ;D

LOL. I had the final YAG surgery for the eye. I was concerned because my little black dot friends from my uveitus in all levels of my depth perception were disappearing from my vision and I couldn't see small text as well with that eye.

I got ahold of the doctor on their cool internet contact system at OHSU and Casey Eye, very neat to be able to just leave an email for a non-emergency and wait for a non-emergency response. I asked, "Do you want to see me this week, or should I just wait until my surgery that is scheduled for June 2nd?" 2 days later they called with an appointment time on my phone. She worries as much about my retina as I do.



I was worried needlessly, It was flatter and less swollen then it has been in 2 years. YAY! So, she was like, "Let's just go ahead and do the surgery now."

???? Eeek!

It was like asteroids for eye surgeons. She gets to point a laser into a mirror and blast it through the new lens and cut the cloudy layer left at the back of the lens pocket in a circle around the pupil so that the light can clearly focus to my retina. There was this little popcorn popping feeling with each laser shot and kind of a small sting....they add up by the way and eventually the little excized circle was going to drift to the bottom of my eye and dissolve over time. Weird stuff.

I told her that she just liked playing asteroids...she laughed.

My eye is now at 20/25 plus2 whatever that means, when it is corrected. That is what it will be for the future at best. This is so much better then the white wall of doom!

from the goddess of two eyes who can see the periphery again when she's not passing out...and that's another story...

12 April, 2010

Eye strain...and growing tolerant to modern meds

Some goddesses are puzzled by this...like me...

I'm getting tired of posting these updates...and I'm sure others are tired of reading them. But it beats having to tell you all ad nauseum in person all the health woes of the woefully insane who has Hashimoto's (Fibromyalgia, chronic migraines, diabetes, arthritis, and, and,....bleck).

For those who haven't looked it up yet, Hashimoto's Thyroiditis is another cute imune system disorder that doctors can't really treat. It normally starts with attacking your thyroid, thus the name, but when it's under control in the thyroid arena, it can chose other organs of your body to attack, just like lupus and sarcoidosis are known to do.

Some of the people that I know that have it, are theorizing that mine chose my left eye to attack.

It's as good a theory as any other, since this is exactly the theory the doctors came up with...they were just trying to assign sarcoidosis to it...it seems that the doctors at Casey Eye haven't met Hashimoto's yet. Doctor Dreamy meet Hashimoto's Thryroiditis, Hashimoto's meet Dr. Dreamy. otherwise known as an escapee from the cast of "Grey's Anatomy." (I swear to God it is true! LOL.) I think the doctors up on the hill need to pass a casting call as well as an IQ test and medical school in order to work there. Hmmm! I wonder how that's included in the job anouncement?

But, back to the serious stuff of updates...the vision is at a blurry 20/60 now with my corrective lenses and isn't going to get much better. I can see to do close work illumination and such without my glasses much better than with them. It seems pretty solid that I will end up having the laser outpatient surgery to correct the rest of the blurry vision. I still have a seriously weak eyelid on that side and the eye muscles get VERY sore very quickly with use, but I am trying to push them in order to get the peripheral vision back.

Other than the eye, the meds for the cluster migraines have pretty well stopped working on a daily basis so I am back to most days being at a 8 or 9 on a pain scale. It will probably take me a while to adjust again to that level of pain and the associated lack of conscentration and cognitive function it allows me. I'm trying to avoid the snappiness and grouchies that I know go with the chronic pain in the head.

Been there, done that, I own a closet and dresser full of those tee shirts. It just gets tiring not to be able to think or form a sentence and to have the people around you talk over you and complete everything you say.

One bright spot on this~! with the migraines back I can't really feel the arthritis in my back and the joint degeneration in my neck. LOL

So unless we go 4 wheeling in the woods, or I'm sleeping too long my head is out screaming my spine. The silver lining to every cloud. I still need the meds to get around when my head drops below a 7 or so...cuz the back pain is above that...gee, doesn't THAT make me a fun date at Christmas? LOL And to think my daughter is cringing because she's looking into a possible future...

Love and kisses and blessing to you all from the poster child and goddess of
it doesn't kill you it just makes you wish you were dead

03 March, 2010

Just a quick eye on it

Some goddesses are puzzled by this...like me...

I had a call on Sunday from the on call doctor that I went to see on Saturday for the decreased vision in the eye with the cataract replacement. I guess I was the subject of a confab of doctors.

General consensus ended up being that I was to continue to double up the steroid eye drops for the rest of the day but then taper off that evening. But I needed to get to a pharmacy and pick up a prescription for systemic steroids. We ended up leaving the fighter practice and social time at Vindrbek a bit early, but we had to rush to the pharmacy before they closed 'cuz I had to get a whole lotta dosage in my stomach THAT night. Yuck!

I like that the doctors are on top of it, but when they move that fast, it's kind of disconcerting. Especially since I was seeing her the next afternoon.

I have now been told that the pressure in my eye is WAY down (good, good news for someone with the steroids shot in it). But I also now know that the cornea is swollen, the cells are floating in the front, and I have and area of cloudiness that formed with the cataract behind the lens as the cataract was forming that they tried to abrade off of the area during my surgery, but had no luck clearing. So I still have a cloudy layer in my eye and may need another surgery to clear my vision in 6 or 8 months. Again, if we can get the swelling under control.

I also found out why they went for the steroid shots instead of the systemic steroids to start with. THIS doctor actually answers questions. Systemic steroids are known to mess with diabetics blood sugars and to shoot them sky high and so they were holding off on using them as a last resort. They also wanted to have a last resort.

Okay, this treatment finally makes a little more sense. It still sucks that the treatment causes the blindness, but if you don't treat the edema in the back of the eye, you end up with damage to the optic nerve, which they can't treat at all. Permanent darkness.

Think I'll take the white cloud...but I sure wish the doctors had been more forthcoming about things. I've had as much if not more schooling than most of them and I get damn tired of being treated like a mushroom whenever it comes to my healthcare.

from the goddess of mushroomland

24 February, 2010

Eye again...







Some goddesses are puzzled by this...like me...
No, that is not a pretty starry planet...that is the starry form the retinal scarring took in my eye as of last February. The picture was kindly supplied by Casey Eye for me so I could show the few people who are bored enough to read my blog what it looked like. ;D
The next one down is what it looked like in November. Uveitis and the associated infections have definite effects on the retina of your eye, and in this case on the pupil and iris. It actually scarred the pupil and built up scar tissue that glued itself to the lens.
I've also had to have all the explanations made to me about the swelling (macular edema) in the back of my eye, and they take pictures in cross sections across the plane of my eye socket to keep track of how swollen it is compared to what it should be, or what it was the last time.
This one with the colors is almost like a thermal shot showing the swelling as higher topography across the back of the eye in November. And then a cross section through the actual swelling.
They did the same cross sections in December before they did more of those lovely steroid injections into my eye socket.
You remember. The ones that carried a risk, but that I didn't realize would CAUSE a cataract. Gee! Learn something new all the time...and doctor, why didn't we go with the systemic steriods? I still haven't gotten a good answer on that one.
These pictures in December were just before shot number 3, or was it 4? The cataract was now bad enough that everybody is pretty well admitting they can't see squat through it.
Got the good news on the 9th or so of February when I started writing this that the eye doctors are willing to totally disregard all their own guidelines for macular edema and go ahead with the lens replacement for my cataract after only 2 months of the swelling being reduced in my eye.

My surgeon obviously is worried enough about the edema coming back quickly that she scheduled me for as soon as I could clear my schedule...she wanted me in there the next week.
Somehow it's not as reassuring as I would like it to be. But I guess they are realizing that if they can get the lens replaced while the swelling is quiet at all that then they can keep injecting the steroids into my eye socket as much as they want without further damage to the lens...the synthetic one won't cloud like my real one is what I've been told.
The cataract has gotten bad enough that there is only one machine they can photograph the back of my eye with, and it's the new machine that is only available up at Casey Eye Institute itself. The doctors can't even really see to the back of the eye much any more, and they are even admitting it to me. ;) Go figure. More later....I've actually done it...
from the goddess who sees....

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